01
We request your records.
With your informed authorization, Delightful or an approved collection partner requests records from EHRs, hospitals, specialists, and other care providers.
PROJECT ODYSSEY · DIAGNOSTIC JOURNEYS
Your story
is more than
a record.
The appointments, unanswered questions, and moments of clarity all matter. Help advance healthcare research through the way your journey really unfolded.
A contribution that’s valued: $200 for an eligible Odyssey.
A MORE COMPLETE PICTURE
You lived it.
Help us learn from it.
A diagnostic Odyssey may span years, multiple clinicians, and records in different places. Your experience can help us ask whether models would notice important clues along the way.
PATIENT COMPENSATION
$200
Your journey has value.
Receive $200 for an eligible Odyssey contribution. There is no fee to participate.
The team explains eligibility, activities, completion requirements, and payment timing before you consent. Participation is voluntary.
A CLEAR PATH, TOGETHER
From sign-up to impact.
Here’s the full picture.
STEP 01 / 06
A place to begin.
Start by contacting our team. For an available project, we’ll guide you through account setup and explain the study before you decide whether to take part.
Your first step, at your paceSTEP 02 / 06
An informed yes. Entirely yours.
Review what will be collected, why it is needed, who can access it, and how it may be used. Ask questions and take your time. Record collection begins only after your informed authorization.
Permission before collectionSTEP 03 / 06
Make sure the project fits.
The team reviews the project’s criteria and, where authorized, your records to confirm whether your journey is suitable. Eligibility and the participation requirements are explained before you commit.
A fit for you and the researchSTEP 04 / 06
You share the story. We do the legwork.
Tell us where you received care. Our team requests EHR records, follows up with practices, and scans or digitizes available reports. Help clarify the moments that records alone may miss. Eligible participants receive $200 for their Odyssey contribution; the team explains completion requirements and payment timing before consent.
Your experience mattersSTEP 05 / 06
Help research connect the missing pieces.
Clinical experts help turn de-identified journeys into realistic simulations. Models are evaluated using only what was known at each point in time. Findings reveal where models recognize patterns, miss clues, or need to acknowledge uncertainty.
Real journeys. Meaningful evaluation.STEP 06 / 06
Your records. Your choices.
Receive secure access to records collected on your behalf. You can withdraw consent and stop further collection. The consent agreement explains how data already contributed is treated, including any limits on removal.
Access and agency, togetherWE CONNECT THE CHAPTERS
A whole story.
Without all the chasing.
Your records may be scattered. Bringing them together shouldn’t be another job for you.
02
We make the calls.
Our team contacts practices and medical records departments, follows up on requests, and works through the administrative steps on your behalf.
03
We bring it all together.
We scan or digitize reports when needed and organize available notes, tests, and encounters across time. You receive secure access to collected records.
MADE TO FIT REAL LIFE
What to expect.
You’ve already lived the journey. We help make your experience useful to the people building what comes next.
- No fee to participate.
- $200 for an eligible Odyssey contribution.
- Record collection handled by our team.
- Participate remotely in this records-based project.
- Secure access to the records collected for you.
- Clear activities, time commitments, and updates agreed before you join.
BUILT ON PARTNERSHIP WITH PATIENTS
Your contribution.
Your decision.
Trust starts with knowing what you’re saying yes to.
Consent comes first.
You receive a clear explanation of collection, access, intended uses, and sharing. Taking part is voluntary, and questions are always welcome.
Only what the project needs.
The agreed research purpose defines the information included. Direct identifiers are removed before research use, and journeys receive a study code.
You can change your mind.
Withdraw consent at any time to stop further record collection. Your agreement explains what happens to data already contributed and any limits on deletion.
Project-specific agreements define permitted uses, security requirements, retention, and restrictions on onward sharing and re-identification. Review those terms with the team before participating.
Does it cost anything to participate?
No. There is no participation fee. The $200 is compensation for an eligible Odyssey contribution, not a charge to you.
How does the $200 compensation work?
Eligible participants are offered $200 for contributing their diagnostic Odyssey. Before you consent, the team will confirm eligibility, required activities, completion criteria, payment method, and timing. Sending an inquiry does not enroll you or trigger payment.
What will I actually need to do?
Review the project information and consent, tell us where you received care, and help clarify your diagnostic journey when needed. Delightful or an approved collection partner handles record requests. Your project information will describe the specific activities and time commitment.
How is my privacy protected?
Direct identifiers are removed before research use, and each journey receives a study code. Collection, access, retention, and onward sharing are governed by project-specific agreements. De-identification reduces privacy risk; it does not make risk disappear.
Who can use my contribution?
Authorized project teams use the information for the purposes stated in consent. De-identified simulations, evaluation traces, and benchmark results may be shared with developers of the models evaluated. Identifiable information and raw records are not shared beyond what you expressly authorize.
Will this change my care or give me a diagnosis?
Project Odyssey evaluates models through simulations based on past patient journeys. It is not a diagnostic service or treatment study, and participation does not replace care from your clinician.
Will I see the findings?
Ask the team which project updates and findings will be available to participants and when. Reports may describe overall model performance rather than individual clinical conclusions.
How long does participation last?
Duration depends on the project and the records available. The team will explain expected activities and follow-up before you consent. Record retrieval can take time, especially when several providers are involved.
Can I leave or take part in other projects?
You can withdraw consent and stop further collection. Treatment of previously contributed data follows your consent agreement. Each additional project has its own eligibility and consent process.
What if I don’t qualify right now?
You can contact the team to ask about current or future opportunities. There is no guarantee of a place, and no medical records are needed for an initial inquiry.
THE NEXT CHAPTER STARTS WITH YOU
Your experience could help
someone else find their way.
Explore a project that fits your experience, with clear choices about your records and participation.